We're in this togetherCarcinoid Support Groups (probably not comprehensive)
     
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GROUP
MEETING DATES
MEETING LOCATION
CONTACT PERSON(S)
ARIZONA CARCINOID TEAM (ACT)
A chapter of the California Carcinoid Fighters Meet with others dealing with Carcinoid (themselves, or a family member) in a casual informal setting.

Most recent was 14 Dec. 2002
Maricopa Medical Center
2601 E. Roosevelt St
Phoenix AZ 85010
Bob
risbell@compuserve.com

CALIFORNIA CARCINOID
FIGHTERS (CalCF)
A support group covering southern California, northern California and Arizona - see individual chapters for more information.

See
individual chapter information below
See
individual
chapter information
below
http://www.sccfighters.org

Stephen Pazan, President. president@sccfighters.org
Morris Bialick,Treasurer
treasurer@sccfighters.org
Terri Wright,Secretary
secretary@sccfighters.org
Nik Neville, Publicity
publicity@sccfighters.org
Susan Anderson, (AZ rep)
susana@sccfighters.org
SOUTHERN CALIFORNIA CARCINOID FIGHTERS (SCCF)
(includes San Diego, South Bay, San Gabriel/San Fernando Valley) A peer support group for carcinoid patients and their families
See
individual chapter information below
See
individual
chapter information
below
http://www.sccfighters.org

Stephen Pazan, President. president@sccfighters.org
Morris Bialick,Treasurer
treasurer@sccfighters.org
Terri Wright,Secretary
secretary@sccfighters.org
Nik Neville, Publicity
publicity@sccfighters.org
Susan Anderson, (AZ rep)
s.l.anderson@worldnet. att net
SCCF
San Diego Chapter
2nd Saturday of "even" months.
Contact
Stephen
SCCF
South Bay Chapter
(Los Angeles)
1st Saturday of "even" months
Contact
Pat
SCCF
San Gabriel/San Fernando Valley Chapter.
A new chapter of the Southern California Carcinoid Fighters has formed in Glendale, CA. It is an information support group with opportunity for fellowship, and round table discussions and information sessions regarding Carcinoid.
Monthly

Glendale Adventist Medical Center's Rehabilitation Conference Room.

Easy access
&
free parking

Nickolette Way
Waycnccj@aol.com
or
Nik Neville
nev34@aol.com

NORTHERN CALIFORNIA CARCINOID FIGHTERS (NCCF)
A chapter of the California Carcinoid Fighters. This support group is for Carcinoid survivors, their caregivers, family and friends. Meeting in an informal setting within the Sacramento and Bay Area vicinities. An oppurtunity to gather for fellowship, sharing of experiences, support of one another, and to receive information on nutrition, new studies, medications, etc.

Every 6 weeks

Contact
Jeanette

 

 

Contact
Jeanette

Jeanette Shaffner
lvbngma@JPS.NET
FLORIDA
A new informal support group has been formed in Florida.
Contact
Pam
Contact
Pam
Pam
prpowell@totcon.com
IOWA
New Carcinoid support group is forming.
Contact
Mary
Contact
Mary
MICHIGAN
Michigan Carcinoid Support Group An informal support group to meet and talk about Carcinoid. All Midwesterners welcome.
Contact
Gary
Contact
Gary
MINNESOTA CARCINOID CANCER PEER SUPPORT GROUP
This support group was formed in September 1999. The purpose of this group is to help members manage their lives, cope with emotional and other issues, and educate themselves. Their goal is to offer a safe and confidential environment and to do so by providing non-judgemental support.
Contact
Rachel
or
Lorraine
Contact
Rachel
or
Lorraine
METRO NEW YORK CARCINOID SUPPORT GROUP (MNYCSG)<
A support group in the Metropolitan NY area (includes NY, NJ, CT and Long Island) for patients, caregivers and anyone interested in learning more about our disease.
See individual chapter information below
See
individual
chapter information
below
Sue
NoidFighter@aol.com
Maryanne
MommaHull@aol.com
Phil
ualflyboy1@hotmail.com
MNYSCG
Manhattan Chapter
01/12/03
Contact
Sue
MNYCSG
New Jersey Chapter
01/05/03
Crossroads Christian Fellowship
2815 Morris Ave, Union, NJ
Sue
NoidFighter@aol.com
MNYCSG
Long Island Chapter
Contact
Ann
Cleary School for the Deaf
301 Smithtown Blvd, Nesconset NY

Maryanne
MommaHull@aol.com

MNYCSG
Connecticut Chapter
01/12/03
Contact
Phil
NEW - New York State (Upper) and Lower Ontario Group
This new group is an opportunity for fellowship, round table discussions and an information session regarding Carcinoid.
Contact
Barbara
or
Maureen
Contact
Barbara
or
Maureen
OHIO
The Ohio support group holds informal meetings from time to time to get to know fellow carcinoids and discuss treatment and well being.
Contact
Nanci
Contact
Nanci
PACIFIC NORTHWEST SUPPORT GROUP
Contact
Corie
Contact
Corie
Corie Dean
cadean@natpipe.com
PENNSYLVANIA
CARCINOID SUPPORT GROUP IN PHILADELPHIA
An informal support group in the greater Philadelphia area
2nd Sunday of every month
at 1 p.m.
Nazareth Hospital, 2601 Holme Ave. (& Roosevelt Blvd.), Philadelphia, Pa.
The meetings will be in the first floor conference room in the Physicians' Office building, which is behind the hospital.
TEXAS -
SOUTH TEXAS CARCINOID SUPPORT GROUP
(STCSG)
Contact Dawn Decker
txdawn62@satx.rr.com
Contact Dawn Decker
txdawn62@satx.rr.com
A Forum/Chatroom for the Texas Carcinoid Fighters, their friends, families, caretakers, and anyone that's curious about Carcinoid Cancer.Anyone in Texas who is a carcinoid patient, a family member or friend of a carcinoid patient or just someone interested in carcinoid can join this Forum. This Forum is not meant to be another ACOR site. It's simply a way for everyone in Texas to get together (without driving hours on end...nothing like living in the 2nd largest state in the nation) and share relative information. There is also a chat feature; in the future I'd love to see a mutual time for all Texas 'Noids to meet on line and chat. By using this site, I hope that we all can find a way to eventually organize a meeting point this summer for everyone in the great state of Texas to meet in person.
WASHINGTON D.C.
CAPITAL AREA CARCINOID SURVIVORS (CACS)
A patient-run support group formed in September 2001 for DC,VA,MD, and eastern USA. For patients, their families and friends to meet.
Monthly on Saturday
10 a.m.
to
12 noon
Contact one of the people in the Contacts column

http://members.aol.com/
cacsva/index.htm

Harry Lyle,President
hlyle@cox.net
Mitch Berger, V-President
mitchmberger@yahoo.com
Bea Lehming, 2nd V-President
lehming@att.net
Lois Simms,Secretary
asimmsjr@aol.com
Linda Silversmith, Treasurer
linsil@usermail.com
Al Simms, Webmaster
asimmsjr@aol.com

Lung Noid Online Support Group
An informal group that meets to discuss and offer support for the unique symptoms and treatments that pertain to lung primaries

Contact
Beth
Contact
Beth
Beth
hgolson@carolina.rr.com
NEW - Canada (Lower Ontario) and Upper New York State Group
This new group is an opportunity for fellowship, round table discussions and an information session regarding Carcinoid.
Contact
Barbara
or
Maureen
Contact
Barbara
or
Maureen
ENGLAND
LIVING WITH CARCINOID
(New UK support group)
Contact
Peter
or
Ted
Contact
Peter
or
Ted

SWEDEN
CARCINOID PATIENTS ASSOCIATION (CARPA)
This site contains many important carcinoid disease related articles by the noted Professor Kjell Öberg and research team. One of the earliest researchers into carcinoid.

Carpa at HogiaNet -
Carcinoid Patients Assoc.
CARPA HOME PAGE
AT HOGIA NET

http://www-
pp.hogia.net./carpa/index2.html

Above Listing Derived from carcinoid.us Website 2003 - Return to Top of Page