CarciNews: News, Resources On Carcinoid

NOTICE: All reference links below open in a new browser window. The benefit of this is that it keeps this window open at all times in the background. When you are done viewing a new-window link, simply close it and this window will return to the foreground. This listing is not meant to be all-inclusive (although, over time may approach that level), nor is it meant to necessarily list the best information available).

CARCINOID TREATMENT TODAY AND TOMORROW.
For Carcinoid patients, family, friends and medical professionals. More information can be found here:

The Carcinoid Cancer Foundation, Inc. is a nonprofit organization chartered by the State of New York in 1968 for the purpose of encouraging and supporting research and education on carcinoid tumors and related neuro-endocrine neoplasms. MORE INFO...

Association of Cancer Online Resources, Inc. (ACOR) is a 501 (c) (3) charitable organization, incorporated in New York State. In addition to supporting the mailing lists, ACOR develops state-of-the-art Internet-based knowledge systems that allow the public to find and use credible information relevant to their illness. MORE INFO...

CancerBACUP Fact Sheet. A carcinoid tumour, sometimes referred to as simply carcinoid, is a tumour of the network of glands that produce and secrete hormones into the bloodstream (the neuroendocrine system). Most carcinoid tumours are found in the appendix or the small intestine. Less commonly they may arise in the lung or the pancreas. Rarely they may arise in other parts of the body. Carcinoid tumours often grow slowly and it may be several years before any symptoms appear and the tumour is diagnosed. MORE INFO...

Carcinoid Info. The information contained within this web site is appropriate for U.S. residents only, general public and professional, brought to you by Novartis Pharmaceuticals Corporation. MORE INFO...

Gastroinestinal Carcinoid Tumor. Many carcinoid tumors behave like benign tumors and can be treated and often cured, especially in early stages. The occurrence of metastasis from carcinoid tumor relates directly to the size of the primary tumor. They are classified as neuroendocrine or amine precursor uptake and decarboxylation tumors. Rarely, they may be a part of the multiple endocrine neoplasia syndrome type 1. These usually slow-growing tumors may arise from various sites, although the appendix, small bowel, and rectum account for over 90% of surgical cases occurring in the gastrointestinal tract. Small bowel carcinoids may occur in multiple sites in the same patient. MORE INFO...

Merck Manual on Carcinoid. Carcinoid tumors arise from neuroendocrine cells, particularly in the GI tract (90%), pancreas, and pulmonary bronchi. The most common GI sites are the stomach, ileum, and appendix, where they may cause pain, luminal bleeding, and obstruction. This site manual is searchable. MORE INFO...

Lee Moffitt Cancer Center. From a publication by John F. Sweeney, M.D., and Alexander S. Rosemurgy, M.D. titled, Carcinoid Tumors of the Gut. Carcinoid tumors are the most frequently encountered endocrine tumors of the gastrointestinal tract. They are most often found in the appendix, although they can arise in any location of the gut. Carcinoid tumors may secrete a variety of bioactive substances, which can cause the complex of symptoms associated with the carcinoid syndrome. MORE INFO...

Tirgan Oncology: The Carcinoid Tumor. Carcinoid tumors can produce chemical substances and hormones that may cause a variety of symptoms. They can involve almost any organ; however, they most commonly involve the appendix and small bowel. Another common site for these tumors is the lung tissue. Carcinoids are very slow growing and it may take years before they become sizable. Most symptoms are related to the release of chemicals from the tumor. MORE INFO...

Oncology Channel on Carcinoid Malignancy. Each year, doctors diagnose approximately 3,000 to 4,000 new cases of carcinoid in patients. Although carcinoid tumors may develop in persons of all ages, the median age of patients is 57. MORE INFO...

Pancreatica.Org. If your cancer struggle includes aspects of pancreatic cancer, this is a strong reference and information site, focusing on pancreatic cancer. MORE INFO...

Sandostatin LAR Depot. A Novartis site with information on its medication for treating carcinoid symptoms, as well as areas of related information for both healthcare professionals and patients. MORE INFO...

UpToDate On Carcinoid. The most useful initial diagnostic test for the carcinoid syndrome is to measure 24-hour urinary excretion of 5-hydroxyindoleacetic acid (HIAA), which is the end product of serotonin metabolism. This test has a sensitivity of 75 percent and specificity of up to 100 percent, but is fraught with errors that may be induced by the ingestion of certain drugs and foods. The normal rate of 5-HIAA excretion ranges from 2 to 8 mg/day (10 to 42 µmol/day). MORE INFO...

CARPA: Carcinoid Patients Association. We offer some fifteen medical articles written by various doctors and specialists on neuroendocrine tumors. You can also apply for membership, send us your questions or make other contacts. MORE INFO...

Carcinoid/VIPoma InfoSource. If you or someone close to you has been told they have carcinoid syndrome, you may be looking for the facts concerning this chronic condition. Information may be hard to find since carcinoid syndrome is rare -- about 3 people in every million who have a carcinoid tumor will also develop carcinoid syndrome. MORE INFO...

UCSF Cancer Center - Dr. Venook. Biosketch of Alan Venook, M.D., one of a growing number of carcinoid specialists, and a rare opportunity to find a profile online of such a specialist. MORE INFO...

Uppsala University (Sweden) Department of Medical Sciences, Section of Endocrine Oncology. Professor Kjell Öberg , Chairman Department of Medical Sciences, Vice Chairman Division of Internal Medicine, President of ENET (The European Neuroendocrine Network). (NOTE: Dr. Öberg is also one of the earliest researchers in the world on carcinoid cancer.) The section of Endocrine Oncology, Uppsala University Hospital, is the national referal center for patients with neuroendocrine tumors. At the section of Endocrine Oncology basic scientific research is combined with improvement of diagnostic procedures and medical treatment of neuroendocrine tumors. To the specialized ward with 15 beds patients are referred from all over Sweden as well as from the Nordic countries, Europe, the Middle East, South America and USA for diagnosis and treatment. At the ward a team of doctors and nurses with extended experience of endocrine tumors work together to optimize diagnostic procedures and medical treatment. Therapeutic decisions are made together with the patient and based on clinical and laboratory findings. We are collaborating with the section of Endocrine Surgery as well as the Department of Nuclear Medicine to offer the patient a complete approach to treatment.. RESEARCH REFERENCE INFO...

S.L. Anderson's Carcinoid Page: Carcinoid - Cancer Support - Carcinoid Seminars - Books - Government Issues - Prayer Lists - Carcinoid is a rare form of "slow-growing" cancer. I was diagnosed with Carcinoid Cancer May 10, 1995. Anderson was diagnosed with Infiltrating Ductal Carcinoma (IDC) Breast Cancer on June 18, 1999. There is NO connection to Carcinoid, this is completely different! PLEASE take time to read "My Carcinoid Story", and scroll down through this whole page to get a good overview of the material that is here and linked from here — the result of almost six years of personal research and work, which shall continue. Moved to own domain recently...

The Al & Lois Website. Al's main page, written in everyday language with mainstream medical input. Their purpose in creating these Carcinoid Cancer pages is twofold. The first is to keep their many members of my family and friends up-to-date on Al's battle with this disease. The second is to provide a resource for the non-medical person who has the disease, suspects that he may have the disease or knows someone who has the disease. It is their hope that someone who does not know he/she has the disease may recognize early symptoms and insist that his/her doctor run a simple test or two to diagnose the disease. If caught early enough it can be completely cured. MORE INFO...

Metro New York Carcinoid Support Group. (Text from the NYCS Home Page Intro:) Carcinoid cancer has been considered a rare cancer for many years. Today more and more people are asking "Is it as rare as we thought or rather is it remaining undiagnosed or misdiagnosed?" Carcinoid tumors are the most common of the neuroendocrine family of tumors. These tumors are unique among other cancerous tumors. In addition to the tumor itself, neuroendocrine tumors secrete hormones into the body which can cause damage to other organs of the body. MORE INFO...

Links to Carcinoid Support Groups Throughout U.S., Canada and Sweden. Includes links to groups in Arizona, California, Florida, Iowa, Michigan, Minnesota, New York, Ohio, Pennsylvania, Texas, D.C., Lower Ontario (Canada) and Sweden. MORE INFO...

Spazan-Welcome to My Carcinoid Site. Hi and welcome to my Neuroendocrine Carcinoid Cancer website. Here you will find both my experience with carcinoid and information relevant to fighting Neuroendocrine Carcinoid Cancer (NECC). This is a new website reflecting my current interests and skips many important topics; links to much more highly developed organizational and personal pages are provided to fill in the gaps. Also, home of Southern California Carcinoid Fighters. MORE INFO...