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Craniofacial Surgery: Tennessee Craniofacial Center Erlanger Health System

Erlanger on Apert:
A PDF File

Nat'l Org. for Rare Disorders: Apert's & Related Conditions

Craniofacial Work at Columbia:
CPMCnet

Apert Syndrome: Faces-Cranio Disorders

Clinical Variability in Patients:
Neurosurgery.Org


A FAMILY COMES TO GRIPS... A DAUGHTER LEARNS THE ROLE OF BIG SISTER... AS WE JOIN ANDREW IN HIS JOURNEY

JULY 1999

An Apert Family Adjusts
Help for Our Andrew
From Family and, in Particular, Big Sister

BY JOHN MICKELSON

Until March 19, 1999, our beautiful daughter Christina was an only child. She had never had a sibling to play with, contend with, help out. And Sherri and I had grown accustomed to doting on her as our one special blessing.

Now ... we would need her to help us help Andrew.

In some ways, the best thing to happen to Christina's develpment (as well as our own) was Andrew.
(Something only God, in his foreknowledge and wisdom, could have anticipated. Andrew's challenge may not be making life easier, but God is using him to bring out the best in each of us.)

Christina could, and would, apply her entertainment skills — and general silliness (which she claims was inherited from her Papa) to be the first, and primary, family person that can almost always make Andrew laugh.

...And given that Andrew's first few months elicited few natural smiles (I told folks, in a geek's standard demeanor, that Andrew's "default setting" was cranky.)

Christina has helped change that. And she has even helped show Mama and Papa the techniques of how to make Andrew smile...and laugh...and enjoy the life into which he was born.

 

APERT SYNDROME STORIES/SUPPORT

Apert Support Group at Harvard.

Andrea's Page. Personal account from Andrea Gartner, a college student with Apert Syndrome.

Amy's Page. Personal account from Amy Esler, a girl with Apert Syndrome.

Apert ListServ. An archive of ListServ postings on Apert Syndrome.

ApertInfo: Story of Matthew Romero, in conjunction with Children's Hospital of Boston.

OTHER RESOURCES (These Links Will Open In New Browser Windows)

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