A CONGENITAL DEFECT FOR ONE IN 200,000
... BECOME SOLDIERS WHO ARE ONE IN A MILLION
Big
sister Christina walked in to
our new sitting room with a balloon as Andrew slept. Accidentally,
her handling of the balloon caused it to burst. Surely this would
wake Andrew with a startle.
He didn't even wince, much less move or awaken.
We had suspected that Andrew might be hearing impaired, and now
we must find out if he had hearing loss, nerve deafness or had
Apert Syndrome misformed the tiny middle ear bones that help him
hear?
His first test involved measuring echo response to sound waves
sent into his ears as he calmly sucked on a bottle.
He failed this test, but it only prompted a more meaningful one.
A "BAER" test an acronym for which I no longer remember its
meaning. But, ultimately, it is a brain stem-based audio test
that measures nerve response to audio signals. Although there
was some substandard low-frequency response from Andrew, he essentially
passed this test. There was no nerve deafness.
His failure to respond to sounds around him to any significant
extent suggested a developmental problem: but does that suggest
improper or incomplete bone development in his inner ear, or something
that will improve as he ages?
We must wait until he recovers fully from his upcoming skull-plate
and mid-face plate surgery before we test once more. Perhaps then
we'll know whether we'll all be learning sign language very soon.